Tinu Is Back & Not Reading DMs. Profile picture
Writer. Speaker. Founder. She/her #TinuSpeaks #DisabledBlackTalk @tinu@mastodon.social Back but not reading DMs/mutual aid tags.

Jan 8, 2018, 19 tweets

I'm trying to smile through this but I keep thinking...

I'm privileged. If dealing with healthcare is this bad for me? It must really suck for others.

Not to mention how the anxiety & stress is racheting up my #chronicpain issues. So here's a rare morning summary of #MySpoons "Healthcare is Fucked" edition.

So the great plan I had last year was ended by Blue Cross Blue Shield Texas probably because it was a great plan. I was moved to a "comparable one.

Narrator: It did not compare.

So I headed to Healthcare.gov to find one that made actual sense.

I signed up with a slightly more kick ass superb Silver plan that only exists because "President" Asterisk incompetent.

Ok I'm exaggerating. It was only *affordable* because he's incompetent. My stock is in decline, let me have this.

Due to a paperwork error, my income went down by $3k this month.

Had I known this was coming at the beginning of December, I might have adjusted. I blew the rest of my "savings" on medical debt instead.

I had paid my other bills before I found out. Living indoors with electricity and food is kinda my jam. & Since my nieces and nephews are here, that has to come first.

That left me $200 short for my healthcare bill, right when I found out I'm not getting paid. Luckily family was able to offer help before the bill is due.

But of course that's after my doctor's appointments this week. No big deal. I'm only finding out IF I STILL HAVE CANCER this week.

It's just the week of my sleep apnea mask fitting. And sleeping well was only expected to help around 60 - 75% of my issues after a week.

I know that I'm basically whining that my car is a Nova in a world where most struggle to even have cars. I know that.

But I was supposed to find out if I'm cancer free in August. It's so hard to plan your life when you don't know if you're about to start #chemo again & can't sleep so you can only work part time.

This has been going on for MONTHS & I'm about to lose it & last summer my health care costs were covered by Maryland & I can't take these delays anymore.

I'm losing my grip and I can't even schedule therapy because I don't have coverage until I pay the bill which is why I need therapy!

So when you're wondering if this ACA fight is worth it? Or if Democrats in Congress would make a difference?

Spare those of us struggling to navigate the healthcare system a thought. We matter. So do you. We can do this. And we must.

I remember how my life was different when I could just go to the doctor.

I paid for years into the tax system and I feel I deserve that back. We all do. Even those who can't.

Ok so I'm going to cry for a while and I'll be back when I can pull myself together. Ta.

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