Tinu Abayomi-Paul aka Empress of Twerk. NO DMs Profile picture
Writer. Speaker. Founder. “They Not Like Us” Black. She/her See link for help, NOT DM/tags #DisabledBlackTalk #MySpoons #OwCH #ForTinu 7025088468

Mar 8, 2018, 11 tweets

Trapped in bed. Do I stop making plans?

Overdid it today, a happy day where I got to see my niece & nephews reunited with their Dad.

Witnessing the screaming, running, crying reunions were worth every bit of the pain & fatigue.

Who knows how long I’ll pay for the rare two day streak of activity.

Who knows when I’ll go back to sleeping more than 4 hours. But #MySpoons are now in the negative.

I need to work. $1000 of just the *essential* bills.

So frustrating to know what needs to be done but trapped in cycles of pain & exhaustion.

I don’t have answers today. Trying to focus on counting blessings instead.

Blessings like, I made it through the important things. I was present. I could help, in small portions.

Blessings like having someone to make me dinner, on this day where I now can’t even get up to go to the rest room right away.

Blessings like being with my sister & her understanding me so much that she knows when my fatigue is about to hit before I do.

Blessings like being able to call & day “I know it’s late. Can you give me a few more days?”

Blessings like the answer I need not the one I fear.

It’s really too bad you can’t eat blessings. Hard as life can be? I’d never starve.

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