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Bill Peckham Profile picture
@BillPeckham
Jun 19, 2018 • 3 tweets • 3 min read Twitter logo Read on Twitter
This looks to be fun look at renal research around the world. I made my picks the way I make my picks at a horse track - I went by the titles. I expect as with #nephmadness as the results come in I'll learn why my picks were wrong and then more about the research that advances.
@RSNhope @ihatedialysis @KidneyPatients @DialysisAtHome @hdunews this is a new social media "game" that pits various renal research studies from around the world against each other in a World Cup style competition. This is a fun
gateway to the world of renal research
We with CKD should familiarize ourselves with the language of research and what is now being worked on so that as opportunities arise to engage we will be prepared to contribute #kidneyresearch #dialysis #kidney

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More from @BillPeckham

Bill Peckham Profile picture
Jun 9, 2018
(thread) @KidneyPatients has a live stream up from yesterday. Here Elena Balovlenkov RN, MS, CHN @CMSGov asks for more patient engagement and asks how does CMS reach the large majority of patients who do not access CMS info eg Dialysis Facility Compare
First, why does CMS speak of patients? I am not a CMS patient, I am a CMS beneficiary. As Balovlenkov says CMS is an insurance company (not a provider). CMS is also the rule setter and enforcer. CMS is our care overseer, a rung above the provider
Thus my answer: connect with us as beneficiaries not to tell us how we could be doing more - exercise, selfcare, HHD - rather to know who we are as individual. My treatment goals, my measure of health, how I am. AND take some ownership of the results, for the answers
Read 7 tweets

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