Jenny Wilson Profile picture
Nov 30, 2017 12 tweets 4 min read Twitter logo Read on Twitter
Yesterday was Day 60 w/o #CHIP reauthorization. Today, I'll share a very personal story about my own child’s healthcare journey--a journey impossible without insurance, & one which shaped my determination that all kids receive quality healthcare. 1/12…
In 2002, our 6-month-old son, Zach, received a terrifying diagnosis. After a few months of unexplained wheezing and difficulty breathing, he was finally diagnosed with a rare cardiothoracic disorder that required open-heart surgery. 2/12
Looking back 15 years, I still tear up recalling the fear my husband and I felt when we learned of the magnitude of Zach’s condition, and as we faced a rough 10 days of uncertainty. 3/12
Ultimately, Zach's surgery was successful. We were so lucky--he got amazing care at @primarychildren, one of the world's best children's hospitals. All four grandparents & countless relatives & friends were here to support us. And--WE HAD INSURANCE. 4/12
Even so--it was still the most difficult time our family has ever faced, and it completely wiped us out. It is soul-harrowing to hear that your child may need surgery--that your baby will be subjected to the physical toll of countless tubes, incisions and medications. 5/12
Now, imagine the stress & horror a family faces when, having learned that their child needs this care, they learn they lack the means to pay for it. Or aren’t even in a position to get into the system to receive the needed care. Care their child *might not survive without*. 6/12
No family should EVER be in this position. 7/12
Not long after Zach's surgery, I joined the staff of Voice For Utah Children. There, I worked on expanding access to #CHIP--a #bipartisan federal program created in what used to be an effective Congress, co-sponsored by @SenOrrinHatch & Ted Kennedy. 8/12
#CHIP provides health insurance to Utah's children who would otherwise go without. Now, @SenOrrinHatch has let this program go. Without action, we are weeks away from thousands of Utah children having their health compromised. It's a disaster. 9/12
has forgotten us. He has prioritized bills that cut taxes for the wealthy, all the while sacrificing the health of our state's children. 10/12
I know, firsthand, what it's like to have a child who can't live without medical intervention. Every child deserves the quality medical care that Zach received. No family should ever be prevented from accessing it. 11/12
So, that’s our family’s story. What’s yours?


• • •

Missing some Tweet in this thread? You can try to force a refresh

Keep Current with Jenny Wilson

Jenny Wilson Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!


Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @JennyWilsonUT

Oct 20, 2017
While UT fought #opioid epidemic, @SenOrrinHatch enabled it from DC. Here’s why it's personal for me. 1/11 #utpol…
This isn't the first time @SenOrrinHatch has played politics with Americans' health, especially in Utah. 2/11
In 2016, @SenOrrinHatch, who received almost $180K in drug industry donations, led the way in hobbling the DEA's 3/11
Read 11 tweets

Did Thread Reader help you today?

Support us! We are indie developers!

This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Don't want to be a Premium member but still want to support us?

Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!


0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy


3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

Follow Us on Twitter!