Discover and read the best of Twitter Threads about #als

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THREAD: This week has been hectic for me, in part because of learning about Medicaid in IL, & coverage of "supportive care" for people under 65. The limitations are horrendous. I still don't know them all, but here's what I've learned so far--the hard way. /1
There are TWO TYPES of Medicaid. I don't know if this applies just to IL, but some research has told me it's the same in other states, just using different terms. In IL, there's "community Medicaid"--the standard version--& a form that applies only to "supportive care homes." /2
You have to be careful not to confuse "supportive care" with "assisted care." In IL, the second type of Medicaid only applies to "supportive care" facilities. Many of those sorts of places advertise as "assisted care" because they do not take Medicaid. /3
Read 20 tweets
We are delighted to announce that the first #MND clinical drug trial in Scotland, in over 20 years, has launched! 👏 MND Scotland is committing over £1.5 million into bringing MND drug trials to Scotland, with #MIROCALS being the first investment. mndscotland.org.uk/latest/news/fi…
#MIROCALS is a clinical trial currently taking place in the UK and France. It is testing a new potential therapy for #ALS, the most common form of #MND. The drug being tested is called Interleukin-2, which is already used for some types of cancer.
Now recruiting people with #MND in #Glasgow, who meet the criteria, the study will focus on types of immune cells in the blood, which are capable of influencing the speed at which #ALS progresses. Find out more about the trial here: mndscotland.org.uk/mirocals
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