Tinu Is Back & Not Reading DMs. Profile picture
Writer. Speaker. Founder. She/her #TinuSpeaks #DisabledBlackTalk @tinu@mastodon.social Back but not reading DMs/mutual aid tags.

Apr 19, 2018, 9 tweets

Getting coffee when I was abled:
⭐️get up
⭐️go downstairs
⭐️5 minute job at most

I miss that sometimes. Like today. I've been trying to get a cup of coffee for an hour.

How does it take an hour? Let us ask #myspoons.

While I wait. Again. To have a minimal level of functionality in my body.

Getting coffee while in #chronic pain:

✅ 2 dry runs before being able to sit up or stand in minimal pain
✅ Rest periods for each action
✅ Stop by the rest room like an idiot*
✅ Rest from that.
✅ Stairs
✅Rest from that

Almost an hour later? Too fucking late for coffee.

*Rookie #brainfog/#spoonie move.

If you can do 12 things today at the rate of one thing per hour, including rest? You don't want to waste spoons on rest room trips.

You go when you're already up, on your way back.

If you've heated up food or a drink you can make it 10-20% hotter than you like it, so that it cools to your liking, instead of too cool to consume.

In summer get familiar with extra cups of ice.

Cuts out the need for a separate rest period too.

You'll already be attempting recharge for the other thing you got up for before.

So that's why it was idiotic. I wasted the energy I needed to use for the thing that I'm drinking coffee for.

Anyway I'm stuck resting and still don't have my GD coffee. Fuck. My. Life.

unroll pls

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