Asher Wolf Profile picture
May 26, 2018 22 tweets 3 min read Twitter logo Read on Twitter
Thinking a lot this today about how social media as a platform for enacting social change can effect the status of women, public perception of issues women face throughout their lives and gendered quality of life
Can we assume an average age and date of joining of the first generation of women on social media? A median socio-economic profile? How does that then effect the women's issues that capture public attention?
Extrapolate to the conversations and movements of recent times, based on demographics of user bases
The pushback against online abuse, #MeToo, #Repeal8th has been wonderful, lead by youthful faces coming into strength
But there is less well-heard activism around child-care, unpaid domestic work, menopause, women's health access in terms of online activism, older women's homelessness due to discriminatory economic conditions throughout their lives
I wonder to the degree that the feminist online action we hear is shaped by privilege - and the experiences that are muted occurs because of digital divide and gendered access to influence online
I want to hear the roaring voices of women facing shitty access to healthcare, lack of support for menopause, who can't afford childcare, who can't afford housing, who get paid 70 cents in the dollar, who get tossed to the scrapheap at middle age
Growing up, no one told us of the nightmares we'd face as women: bleeding each month, discrimination at work, endometriosis, period pains, mastitis, ripped perineums, PND, sexual assaults, peri-menopause, unpaid domestic work, lack of access to control over our bodies and lives
Now because of social media we're hearing part of the story, but not all of it, and I wonder if it'll take my entire generation or two screaming their realities *as they experience it*, talking for the first time about all the taboo, to spark movement and movement and movement
We've barely even begun to hear of the medical horrors inflicted on women: vaginal meshes causing atrophy, bone density loss and heart arrhythmia's due to unaddressed menopause, the gendered imbalance of effects of pain medications and anti-depressants,
Women whose PDD pain is rammed into psych diagnosis because drug companies can make a buck that way
The under-diagnosis of women with autism, ADHD, because test subjects are far too often male
The generation after generation of women who hair fell out and who woke again and again in the night wracked with pain and doctors would wrack it up to anxiety and offer SSRIs rather than treating (peri)menopause
The women with CSS, CFS, PCOS and fibromyalgia who are simply told to exercise more while they clutch at metaphoric spoons, living lives doled out in piecemeal rations
We're told not to discuss our pregnancies til 3 months in, the voices of women who wake to miscarriage after miscarriage erased
All the taboos used to gaslight women for common life experiences must be smashed
If you're a woman bouncing along, earning a great wage, no harassment or discrimination, with easy access to contraception, abortion and healthcare, superannuation funded - great. Speak up for the sake of everyone else, for your future self who may not be so lucky
The thing is, most women don't know what's coming for them, because even discussions of these issues are taboo, women who experience these issues are discriminated again, the disappear from the narrative or only appear as a warning
And we're even less likely to hear the voices of women who face the worst effects, who can't afford access to healthcare, or internet, or quality nutrition or education
We don't talk barely ever about how lack of women's healthcare specifically fucks Indigenous and remote women's lives extra hard, we don't talk enough about the impact of lack of access and cost of scans and costs of medications or common supplements not funded by the PBS
I've spent too long in huge queues for women's bathrooms because of discriminatory design to not understand access is structurally poorly facilitated for even the most basic needs of women
Oh and since I'm currently at the pharmacist, can we also talk about the cost of peri-menopause supplements? $40 p/month, not on PBS. Tell me again about the tampon tax tho?

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More from @Asher_Wolf

Oct 2, 2018
It's October. If you live in Australia, you should be preparing for #HeatHealth issues now. It's too late to start trying to search for a way out of the heat when it's 45 degrees c. Map out places that stay cool/have free aircon now
We use large shopping centres, malls, and sometimes hotel lobbies. Pack power chargers, laptops, books, water. And arrive before the heat exceeds 37 degrees c. Plan not to move for the entire day: you don't want heatstroke from travelling during the day
Some malls are better than others for escaping heat: avoid those with large glass roofs: they heat up like hot houses. Generally we prefer libraries and museums, as they stay cool and there's bathrooms
Read 23 tweets
Oct 1, 2018
Alright, so my experience of treating Ehlers-Danlos symptoms is you sit on waitlists for 6-18 months to see specialists - who often cost $400+ - who then give you a script or suggestion for something that costs $10
And while sitting on these waitlists and watching the discussion forums you begin to work out how other ppl treat and care for their Ehlers-Danlos comorbities
This is an Ehlers-Danlos self-care thread. Tweet your non-prescription suggestions for looking after yourself with EDS and related comorbidities
Read 16 tweets
Sep 27, 2018
Dear women: if I started a business leasing out men in suits who'd sit beside you and say *nothing* during important meetings, would you be interested in hiring them for an hour here and there?
Strictly non-sexual. Only for attendance at business and medical appointments
$75 p/hr. $50 to the guy, $25 to me me for book-keeping and appointments. I'd ensure no male ever attended the same group / business/ medical service twice
Read 15 tweets
Sep 26, 2018
Ok, I'm currently still in bed reading a thesis on Ehlers-Danlos Syndrome and quality of life. I'm going to tweet some of it, because no doctors told me this stuff...…
'Systemic Manifestations and Health- Related Quality of Life in Joint Hypermobility Syndrome/Ehlers- Danlos Syndrome-Hypermobility Type' by Anne Krahe, Biomedical Science, University of Sydney (2017)
"Chronic pain has been documented to affect up to 100% of individuals with a diagnosis of JHS/EDS-HT (63), while 85.7% report experiencing progressively worsening pain"
Read 35 tweets
Sep 13, 2018
"You can't have a hysterectomy."


"The surgeons won't allow it."

"Ok, then I want to speak to the surgeons."
So then they dug out my ultrasounds no one actually looked at. Guess what: they think I have endometriosis on top of Ehlers-Danlos now they've actually looked at the pathology report. I may get a hysterectomy after all
I get an appointment to speak to the surgeons
Read 21 tweets
Sep 7, 2018
I spy with my little eye, a divvy van outside the Sofitel
Police outside the entrance of the Sofitel
Police filming protesters
Read 41 tweets

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