@asherwolf@mastodon.social Postgrad student. Member of @HACSU and @vic_socialists. Devouring entropy. Mutant network node herder https://t.co/qFPX1NPGQi
Oct 2, 2018 • 23 tweets • 6 min read
It's October. If you live in Australia, you should be preparing for #HeatHealth issues now. It's too late to start trying to search for a way out of the heat when it's 45 degrees c. Map out places that stay cool/have free aircon now
We use large shopping centres, malls, and sometimes hotel lobbies. Pack power chargers, laptops, books, water. And arrive before the heat exceeds 37 degrees c. Plan not to move for the entire day: you don't want heatstroke from travelling during the day
Oct 1, 2018 • 16 tweets • 3 min read
Alright, so my experience of treating Ehlers-Danlos symptoms is you sit on waitlists for 6-18 months to see specialists - who often cost $400+ - who then give you a script or suggestion for something that costs $10
And while sitting on these waitlists and watching the discussion forums you begin to work out how other ppl treat and care for their Ehlers-Danlos comorbities
Sep 27, 2018 • 15 tweets • 2 min read
Dear women: if I started a business leasing out men in suits who'd sit beside you and say *nothing* during important meetings, would you be interested in hiring them for an hour here and there?
Strictly non-sexual. Only for attendance at business and medical appointments
Sep 26, 2018 • 35 tweets • 6 min read
Ok, I'm currently still in bed reading a thesis on Ehlers-Danlos Syndrome and quality of life. I'm going to tweet some of it, because no doctors told me this stuff... ses.library.usyd.edu.au/bitstream/2123…
'Systemic Manifestations and Health- Related Quality of Life in Joint Hypermobility Syndrome/Ehlers- Danlos Syndrome-Hypermobility Type' by Anne Krahe, Biomedical Science, University of Sydney (2017)
Sep 13, 2018 • 21 tweets • 3 min read
"You can't have a hysterectomy."
"Why?"
"The surgeons won't allow it."
"Ok, then I want to speak to the surgeons."
So then they dug out my ultrasounds no one actually looked at. Guess what: they think I have endometriosis on top of Ehlers-Danlos now they've actually looked at the pathology report. I may get a hysterectomy after all
Sep 7, 2018 • 41 tweets • 9 min read
I spy with my little eye, a divvy van outside the Sofitel
Police outside the entrance of the Sofitel
Aug 13, 2018 • 15 tweets • 4 min read
I've done my hydrotherapy, taken my vitamins, ate a salad, drank a litre of water and I have one hour til school pick up... who wants to have some fun?
Yeah, no that kinda fun, fucko. More the sort where you squint at AusTender for an extended period of time
Jul 26, 2018 • 6 tweets • 2 min read
Astonishing. Mark Burgess, chief of the Australian Police Federation representing more than 60k police officers, has called on the Turnbull government to urgently legislate to outlaw investigators from accessing the #MyHealthRecord system without a warrant theaustralian.com.au/national-affai…
I've never seen the police in Australia call for *less* access to data before. So this is a first
Hey @MedscapeCME, why are you training doctors to discriminate against women? What the fuck is wrong with you? Gods forbid it's your sister or mother being being gated from treatment because a doctor thinks it's "only psychosomatic." Stop training doctors to treat women badly
You are training doctors to ignore Ehlers-Danlos, Mast Cell Activation and Postural Tachycardia. You are training doctors to be discriminatory and shit at their jobs
Jul 8, 2018 • 4 tweets • 1 min read
It's unacceptable that doctors are refusing to ensure timely diagnosis, treatment and management plans for patients with Ehlers-Danlos
Tasks for tomorrow: fax copies of referrals that experts tell me they didn't receive. Write a letter to the Health Ombudsman. Write a letter to the state and federal Health Ministers
Jun 20, 2018 • 20 tweets • 3 min read
I'm going to let you in on a big old secret no one talks about enough: it's not that easy keeping little kids alive, even when you love them with every cell in your body. Putting toddlers and young children in cages is a sure-fire recipe to kill a bunch of them
They get a cold or croup and they can't breathe and they're too little to clear their own noses and they need a parent to sit with them in a fogged up bathroom and suck snot out of their noses when they're really little
May 26, 2018 • 22 tweets • 3 min read
Thinking a lot this today about how social media as a platform for enacting social change can effect the status of women, public perception of issues women face throughout their lives and gendered quality of life
Can we assume an average age and date of joining of the first generation of women on social media? A median socio-economic profile? How does that then effect the women's issues that capture public attention?
May 25, 2018 • 6 tweets • 1 min read
I want members of the public service, government officials and politicians to understand that when regulatory protective powers fail, the easiest mechanism for ppl to use against you is *shaming*
It makes a nice night out very difficult when the local patrons tell you exactly what they think of you in front of your family and colleagues
