I don't want to yell at people when they offer alternatives to plastic straws, because i know the impulse is good.

but I need people to know that "what about ____ straws?" has joined "have you tried yoga?" in terms of emotional labor and irritation.

It feels like maybe people think disabled people did not research or discuss alternatives to plastic straws before engaging in a protracted, exhausting campaign for "opt in for plastic straws" instead of a straw ban.

(We have a chart.)
I promise you, disabled people have thought about the potential ramifications of a straw ban and have alternatives.

We could all focus our advocacy on corporate waste instead of basing it on a 9 year old's science project.

Just saying.

Dear environmentalists,

Here's a list of things we could build coalitions around if you stopped focusing on the tiny percentage of plastics consumed so some disabled people can hydrate.

I'm ready when you are.


This thread is a MOOD for when (not all) able people talk about straw bans

If you're suggesting silicone or biodegradable straws (the more expensive end of reusable straws)

Please check out #CripTax and see the thread below.

We ALREADY pay more for accessibility, frequently on limited income.

It's entirely possible that disabled people *could* switch to an eco friendly straw if we had, say

-financial assistance/grants
-single payer healthcare
-universal design
-insurance coverage for durable medical equipment
-less employment discrimination
-universal basic income
Would really love it if people advocating straw bans could just believe disabled people are the experts in our own lives

And believe us when we say "in the current system, plastic straws are the most universally accessible straw"

Remember : nothing about us without us
Because again for the people in the back : corporate waste is WAY bigger than waste from plastic straws

If you understand that clean drinking water is a universal human right

Please understand that some people need plastic straws to ACCESS clean drinking water

And yes, I know about the Pacific Garbage Patch and am appalled. Again : corporate waste > plastic straws.
More on the backlash against plastic straws because it is exhausting af

I know we can concentrate on more than one thing at once but maybe that thing could be corporate waste

Again, I get the impulse of wanting to help when disabled people say "Actually many of us need plastic straws to access water."

A really great way of helping is to listen and BELIEVE US. Believe that we are the experts in our own lives.
"But what if this particular disabled person has not considered eco friendly alternatives to plastic straws that might work for their particular set of access needs?"

You could ask if they want advice. Really, that is a thing.

Personally my answer to "do you want help finding alternatives to plastic straws" is a hard no

Because I think I currently know more about straws than I had ever thought possible, or wished to know

But I don't speak for every disabled person so maybe someone wants help?
I get that no one just intrinsically knows all these straw accessibility facts

Part of the problem is that the bigger media services have been running hard with this whole 'plastic straws are bad' thing and their coverage of disability is...often very not great
But if you want to know what disabled people think about, say, straw bans

You could follow more disabled people?

Because I guarantee a lot of us have been yelling about straw bans for months. Again, we have a chart.
If you're an editor who wants to cover straw bans, may I suggest hiring a writer from the @DisabledWriters database?

(We also have a database for that, in addition to the chart. Just saying.)

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More from @UntoNuggan

Jul 28, 2018
I mean if exams are in blue books and hand written, and people taking notes on laptops and other accessible technology have trouble writing by hand, then this is ZERO SURPRISE but I bet @Lollardfish is right it's time for able academics to yell about laptop bans
"Oh but students who have trouble writing by hand can get accommodations via disability services--"

Did you know that accommodations require a doctor's note

And not everyone can afford a doctor

Also some professors are actively hostile to disabled students
I had this one professor who had an "absolutely no laptops" rule and i presented my handy note from disability services

But it was a tiny seminar

I was the only one using a laptop

My classmates asked questions about why I was exempt

It was awkward af

Laptop bans are bad
Read 24 tweets
Jul 23, 2018
Getting really tired of this thing where a marginalized person says "this will harm my community" and people say "you're exaggerating that hasn't happened"

then like a week later the thing happens. The same doubters are all WHO COULD HAVE PREDICTED THIS CALAMITY

The good thing is once you spot the pattern it's easier not to become one of those people WHO COULDN'T HAVE PREDICTED THIS CALAMITY because they didn't listen to / believe marginalized people.
It's really easy to personally break this cycle. Ready?

1. If a marginalized person says a thing will harm their community, believe them.

2. Signal boost and see if anyone suggests ways to help

Yes it is that simple
Read 11 tweets
Jul 18, 2018
Since it was apparently news to a lot of people that straws are used for accessibility (DESIGNED FOR IT, even)

Here is a partial list of common kitchen items that can help disabled people cook (that we self pay for)

Kitchen thermometers : useful for colorblind people who can't discern the color of meat to test doneness

Also for d/Deaf people who want to test the doneness of bread but can't tap it to check if it "sounds hollow"
Waffle makers : because flipping pancakes requires a lot of manual dexterity and standing over the stove

These can be an access tool for those with back problems, chronic pain, coordination issues...
Read 27 tweets
Jul 13, 2018
I need environmentalists to hear that when they say "some sacrifice is necessary" to save the planet

& they're talking about *tools disabled people use to drink*

What I hear is "it's okay if you dehydrate if it's for the greater good"

I hear eugenics. 🙃

If you ASK disabled people, we could maybe work together on lifehacks to save the planet that don't limit our access to hydration.

Read 13 tweets
Jul 10, 2018
[Food, dietary restrictions]

Working on a mind map of my #MCAS triggers

This is part of the fermented/Aged Food branch. One intolerance has a cascade effect on other foods.
[food, dietary restrictions]

This mind map thing is really helping me process some feels and I think also it's less "here's my huge list of food intolerances" more "a few categories that have many sub categories"

Which is helping ease my internalized ableism tbh
[Food, dietary restrictions]

I know there's a lot of overlap with mast cell triggers, so in case this helps anyone here's my current mind map of #MCAS triggers

Help with captioning is appreciated.
Read 12 tweets
Jul 7, 2018
In case you are also chronically ill and planning for potential power outages or heat waves, here are some things I do or am considering doing for copes

Hopefully this will help someone else
It sounds weird but this dog pad is pressure activated cooling power. It requires no electricity and is reusable. (You can also make it RLY cold in the freezer.)

There are big dog sizes that work for my entire body

Consider filling a bathtub or bucket/tub with cool water. Dip your feet or entire body in to lower your body temperature.
Read 28 tweets

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