It feels like maybe people think disabled people did not research or discuss alternatives to plastic straws before engaging in a protracted, exhausting campaign for "opt in for plastic straws" instead of a straw ban.
Here's a list of things we could build coalitions around if you stopped focusing on the tiny percentage of plastics consumed so some disabled people can hydrate.
Again, I get the impulse of wanting to help when disabled people say "Actually many of us need plastic straws to access water."
A really great way of helping is to listen and BELIEVE US. Believe that we are the experts in our own lives.
"But what if this particular disabled person has not considered eco friendly alternatives to plastic straws that might work for their particular set of access needs?"
You could ask if they want advice. Really, that is a thing.
Personally my answer to "do you want help finding alternatives to plastic straws" is a hard no
Because I think I currently know more about straws than I had ever thought possible, or wished to know
But I don't speak for every disabled person so maybe someone wants help?
I get that no one just intrinsically knows all these straw accessibility facts
Part of the problem is that the bigger media services have been running hard with this whole 'plastic straws are bad' thing and their coverage of disability is...often very not great
But if you want to know what disabled people think about, say, straw bans
You could follow more disabled people?
Because I guarantee a lot of us have been yelling about straw bans for months. Again, we have a chart.
If you're an editor who wants to cover straw bans, may I suggest hiring a writer from the @DisabledWriters database?
(We also have a database for that, in addition to the chart. Just saying.)
I mean if exams are in blue books and hand written, and people taking notes on laptops and other accessible technology have trouble writing by hand, then this is ZERO SURPRISE but I bet @Lollardfish is right it's time for able academics to yell about laptop bans
Getting really tired of this thing where a marginalized person says "this will harm my community" and people say "you're exaggerating that hasn't happened"
then like a week later the thing happens. The same doubters are all WHO COULD HAVE PREDICTED THIS CALAMITY
🙃
The good thing is once you spot the pattern it's easier not to become one of those people WHO COULDN'T HAVE PREDICTED THIS CALAMITY because they didn't listen to / believe marginalized people.
It's really easy to personally break this cycle. Ready?
1. If a marginalized person says a thing will harm their community, believe them.
2. Signal boost and see if anyone suggests ways to help
This is part of the fermented/Aged Food branch. One intolerance has a cascade effect on other foods.
[food, dietary restrictions]
This mind map thing is really helping me process some feels and I think also it's less "here's my huge list of food intolerances" more "a few categories that have many sub categories"
Which is helping ease my internalized ableism tbh
[Food, dietary restrictions]
I know there's a lot of overlap with mast cell triggers, so in case this helps anyone here's my current mind map of #MCAS triggers
In case you are also chronically ill and planning for potential power outages or heat waves, here are some things I do or am considering doing for copes
Hopefully this will help someone else
It sounds weird but this dog pad is pressure activated cooling power. It requires no electricity and is reusable. (You can also make it RLY cold in the freezer.)
There are big dog sizes that work for my entire body