Sparrow/Liz (hiatus) Profile picture
preoccupied by health concerns. bendy (POTS. MCAS. hEDS?) + neurodivergent. ♿ queer/bi. demi. non-binary. white. emperor of typos. they/them
Jul 28, 2018 24 tweets 4 min read
I mean if exams are in blue books and hand written, and people taking notes on laptops and other accessible technology have trouble writing by hand, then this is ZERO SURPRISE but I bet @Lollardfish is right it's time for able academics to yell about laptop bans "Oh but students who have trouble writing by hand can get accommodations via disability services--"

Did you know that accommodations require a doctor's note

And not everyone can afford a doctor

Also some professors are actively hostile to disabled students
Jul 23, 2018 11 tweets 3 min read
Getting really tired of this thing where a marginalized person says "this will harm my community" and people say "you're exaggerating that hasn't happened"

then like a week later the thing happens. The same doubters are all WHO COULD HAVE PREDICTED THIS CALAMITY

🙃 The good thing is once you spot the pattern it's easier not to become one of those people WHO COULDN'T HAVE PREDICTED THIS CALAMITY because they didn't listen to / believe marginalized people.
Jul 18, 2018 27 tweets 5 min read
Since it was apparently news to a lot of people that straws are used for accessibility (DESIGNED FOR IT, even)

Here is a partial list of common kitchen items that can help disabled people cook (that we self pay for)

#Accessibility Kitchen thermometers : useful for colorblind people who can't discern the color of meat to test doneness

Also for d/Deaf people who want to test the doneness of bread but can't tap it to check if it "sounds hollow"
Jul 13, 2018 13 tweets 3 min read
[Eugenics]
I need environmentalists to hear that when they say "some sacrifice is necessary" to save the planet

& they're talking about *tools disabled people use to drink*

What I hear is "it's okay if you dehydrate if it's for the greater good"

I hear eugenics. 🙃

#StrawBan Disabled people are not burdens.

Jul 10, 2018 12 tweets 4 min read
[Food, dietary restrictions]

Working on a mind map of my #MCAS triggers

This is part of the fermented/Aged Food branch. One intolerance has a cascade effect on other foods. [food, dietary restrictions]

This mind map thing is really helping me process some feels and I think also it's less "here's my huge list of food intolerances" more "a few categories that have many sub categories"

Which is helping ease my internalized ableism tbh
Jul 7, 2018 28 tweets 8 min read
In case you are also chronically ill and planning for potential power outages or heat waves, here are some things I do or am considering doing for copes

Hopefully this will help someone else It sounds weird but this dog pad is pressure activated cooling power. It requires no electricity and is reusable. (You can also make it RLY cold in the freezer.)

There are big dog sizes that work for my entire body

m.bedbathandbeyond.com/m/product/chil…
Jul 5, 2018 19 tweets 5 min read
I don't want to yell at people when they offer alternatives to plastic straws, because i know the impulse is good.

but I need people to know that "what about ____ straws?" has joined "have you tried yoga?" in terms of emotional labor and irritation.

#strawban It feels like maybe people think disabled people did not research or discuss alternatives to plastic straws before engaging in a protracted, exhausting campaign for "opt in for plastic straws" instead of a straw ban.

(We have a chart.)
Jun 29, 2018 27 tweets 6 min read
It really astounds me how many people think, "it couldn't possibly be ADHD, I can focus when I'm interested"

like hi you are literally describing hyperfocus which is common in both ADHD and Autism.

I just wish we had less stigma, more sharing important information. Seriously one of the ways I bond with other neurodivergent people (especially Autistic and ADHD people) is to make jokes about how weird and sometimes wonderful hyperfocus is

it's a mental minefield of "I did all the things! But nothing on my to do list. Again. Whoops"
Jun 22, 2018 24 tweets 6 min read
when you actually try to pin down what some sort of inherent "intelligence" is vs "has learned some stuff, addresses ignorance"

It becomes clear that intelligence is a social construct

That is used to maintain privilege and also oppress others there is no objective way to measure intelligence

there's a wealth of scholarship about how IQ and the SATs are better indicators of "having privilege" than "being intelligent"
Jun 17, 2018 22 tweets 9 min read
[food]

A really weird thing about #MCAS is that I can eat a food and be fine, but if I eat leftovers of the exact same food a day or two later I'm ... not fine

Before I knew abt MCAS, I thought I was just immunosuppressed and reacting to bacteria other people could tolerate This is sort of true, actually

I was probably reacting to the products of microbes breaking down food

More on the science of that here

#MCAS

mastattack.org/2017/10/mastat…
Jun 7, 2018 24 tweets 5 min read
This is why I mostly don't talk about my own mindfulness practice, and the veeeeery adapted yoga I do, and that opiates don't work for me

See also: why I try to getconsent before giving advice, especially medical advice (or keep my advice to myself, which is free) I'm always afraid that if I mention, "Hey actually, sometimes I like meditation, just not as a substitute for medical care that I also need"

1) it might be an ouch for other disabled people because this is often a microaggression

2) able people will be all "oh so I CAN say it"
May 17, 2018 17 tweets 4 min read
Pre-Pride Month Reminder :

If you are at a Pride event and you see what looks like a m/f couple, and you feel the urge to complain about "straight people ruining Pride"

- Bi people belong at Pride
- Trans people belong at Pride
- Ace and Aro people belong at Pride

🌈💖👍 You know how we all complain about how ridiculous bathroom bills are, and especially doing ID checks at the door?

Well, my friends.

No matter how good your gaydar, YOU DON'T KNOW who is queer by looking, so don't be the North Carolina of Pride. K?