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Asher Wolf Profile picture
@Asher_Wolf
Jul 26, 2018 • 6 tweets • 2 min read • Read on X
Astonishing. Mark Burgess, chief of the Australian Police Federation representing more than 60k police officers, has called on the Turnbull government to urgently legislate to outlaw investigators from accessing the #MyHealthRecord system without a warrant theaustralian.com.au/national-affai…
I've never seen the police in Australia call for *less* access to data before. So this is a first #MyHealthRecord
“Someone is going to need to amend the legislation to build in that protection, not only for officers but, I would suggest, for the wider community.”
The police want a legislative amendment to protect them from surveillance of their medical records as well. Ohmigods. #MyHealthRecord
RACGP President elect Dr Nespolon called for legislative changes to preclude no-warrant access and for the list of departments that could apply for court orders to be significantly shortened. “Do you really need Centrelink to be able to access your health records?’’ he said.
"The PM accused Op. Leader Bill Shorten of politicising the My Health Records issue ahead of ­tomorrow’s Super Saturday by-elections." Listen up LNP, you're building a surveillance capitalism state and we'll make sure you lose government over it. Nothing to do with Shorten

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More from @Asher_Wolf

Asher Wolf Profile picture
Oct 2, 2018
It's October. If you live in Australia, you should be preparing for #HeatHealth issues now. It's too late to start trying to search for a way out of the heat when it's 45 degrees c. Map out places that stay cool/have free aircon now
We use large shopping centres, malls, and sometimes hotel lobbies. Pack power chargers, laptops, books, water. And arrive before the heat exceeds 37 degrees c. Plan not to move for the entire day: you don't want heatstroke from travelling during the day
Some malls are better than others for escaping heat: avoid those with large glass roofs: they heat up like hot houses. Generally we prefer libraries and museums, as they stay cool and there's bathrooms
Read 23 tweets
Asher Wolf Profile picture
Oct 1, 2018
Alright, so my experience of treating Ehlers-Danlos symptoms is you sit on waitlists for 6-18 months to see specialists - who often cost $400+ - who then give you a script or suggestion for something that costs $10
And while sitting on these waitlists and watching the discussion forums you begin to work out how other ppl treat and care for their Ehlers-Danlos comorbities
This is an Ehlers-Danlos self-care thread. Tweet your non-prescription suggestions for looking after yourself with EDS and related comorbidities
Read 16 tweets
Asher Wolf Profile picture
Sep 27, 2018
Dear women: if I started a business leasing out men in suits who'd sit beside you and say *nothing* during important meetings, would you be interested in hiring them for an hour here and there?
Strictly non-sexual. Only for attendance at business and medical appointments
$75 p/hr. $50 to the guy, $25 to me me for book-keeping and appointments. I'd ensure no male ever attended the same group / business/ medical service twice
Read 15 tweets
Asher Wolf Profile picture
Sep 26, 2018
Ok, I'm currently still in bed reading a thesis on Ehlers-Danlos Syndrome and quality of life. I'm going to tweet some of it, because no doctors told me this stuff... ses.library.usyd.edu.au/bitstream/2123…
'Systemic Manifestations and Health- Related Quality of Life in Joint Hypermobility Syndrome/Ehlers- Danlos Syndrome-Hypermobility Type' by Anne Krahe, Biomedical Science, University of Sydney (2017)
"Chronic pain has been documented to affect up to 100% of individuals with a diagnosis of JHS/EDS-HT (63), while 85.7% report experiencing progressively worsening pain"
Read 35 tweets
Asher Wolf Profile picture
Sep 13, 2018
"You can't have a hysterectomy."

"Why?"

"The surgeons won't allow it."

"Ok, then I want to speak to the surgeons."
So then they dug out my ultrasounds no one actually looked at. Guess what: they think I have endometriosis on top of Ehlers-Danlos now they've actually looked at the pathology report. I may get a hysterectomy after all
I get an appointment to speak to the surgeons
Read 21 tweets
Asher Wolf Profile picture
Sep 7, 2018
I spy with my little eye, a divvy van outside the Sofitel
Police outside the entrance of the Sofitel
Police filming protesters
Read 41 tweets

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