Thread by @Tinu

The accuracy of that brain fog article.

"What if they think I’m seeking drugs if I ask about a specific treatment? What if they think I’m just hypersensitive to everything going on in my body and dismiss it? What if this list is too long and they think I’m making it up?"

I kept trying to explain to an older relative what was happening to me this summer.

She told me that happens as you age.

[Rihanna Incredulous look gif!]

No ma'am. I did not, in two years, go from being able to give 60 minute talks on various areas of my expertise?

To temporarily not being able to remember the word hospital.

From aging.

The most frustrating part of #chronicillness for me isn't anything to do with managing things. It's hard sometimes. But I figure things out.

It's other people.

It's

their reactions,
or lack thereof,
quick fixes,
not believing you,
not *wanting* to believe you,
having to practically beg for the simplest accomodations,
fighting for the most common sense human decency rights.

They're fucking exhausting. And it's worse when it's people you love.

I don't know what I would do without my sister. My father is also much more understanding than I expected.

But some of my relatives. Ugh. It's almost like they think I have invested toxins to make myself sick.

Or that it's temporary, no matter how much I explain. I'm so utterly done sometimes.