Lots of new people, hi! A thing I do every few nights is talk about #myspoons - in #spoonie parlance it’s shorthand referencing energy.
A #spoonie is a person w an invisible #disability. You might not realize it but we’re everywhere. If you're hiding illness you might be one.
The term comes from The Spoon Theory written by Christine Miserandino (@bydls)

🎥
Why should you care about #spoonies & our plight? Odds are you have one in your life. If you don't it may be you!
(We #spoonies hope not. We have great members, but we low-key hate that the club has to exist. Kinda like I love being black, hate racism.)
Tonight, some quick things you can do to help your neighborhood #spoonie. These may not apply to all, ask your #spoonie what theirs are.
#AbledAllies Tip #1. Believe us. We have no reason to fake our pain. Very few can, less do. If you're in doubt, offer to drive us to the Dr.
Kills two birds with one stone. We get a ride to our dozens of doctor trips a month, you'll get to see how much BS we go through.
#AbledAllies Tip #2. Ask us before giving advice about our ailments. Most of us HATE unsolicited advice. New #spoonies not as much. So. ASK.
#AbledAllies Tip #3. Please be understanding. Sometimes we literally cannot. Often we don't know that we can't until the last second.
Sometimes it means we can't go out. Sometimes we can't sit up. Or we can tweet then rest then tweet, but can't do a blog post.
We wish we could. We do our best to join the world. It's not always possible. Maybe bring the world to us sometimes?
Ok 2 more things. Then more rest. Been a day.
#AbledAllies Tip #4. Can you please think of us when you're building the world? When you're planning a protest? When you're having an event?
We'd love to be able to watch conferences we can't attend on livestream. Or present via Skype. We'd come out more if we could be comfy.
AbledAllies Tip #5. We're just people. Everyone has something extra. Our is a trait too. You're allergic to cashews, I have #chronicpain.
It's the world we're born into that makes #disability seem a bad thing. It's just a thing for me. I'm short. I don't love it. But I love me.
Fellow #spooonies if you have some tips for #AbledAllies please use the hashtag if you'd like me to amplify. Thanks for your attention!

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More from @Tinu

Oct 6, 2018
In any era the theme isn't theain problem. Let's start with the word "breastaurant."
In a world where people need a job enough to have to use their bodies for leverage, #MeToo isn't the thing in the way.
It's basic respect for women as PEOPLE. Does this restaurant perpetuate rape culture? Probably. So do lots of places.

Can you have CLEARLY POSTED rules and security precautions to protect these women? Um yeah.
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Oct 6, 2018
Updating Twitter disability hashtag thread.

@AllisonR has educated me that I should use Sentence Case for #Accessibility. Graphic reads: # symbol followed by the word Hashtag in white lettering on a blue background.
I have #brainfog so I know I missed someone. Please add your favorite resources as a reply.
Do you want to share your disability experience with others? Try these hashtags.

Amplifying stories

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
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Oct 2, 2018
Mayne I forgot the code mayne.

Too paranoid to unlock my phone with my face.
My mother's chain mail game is strong. I can't buy phones they open with my face cuz I might be beheaded.

I guess that's what I get for never forwarding these emails.
Also I never open the door for anyone because maybe they stole that uniform although how did they know when to come to my house Mom?
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Oct 2, 2018
Friends, Romans, Country ass folks? This week all #myspoons threads will be cross-postedto @WeAreDisabled.
It's a cool project you can learn more about at weatedisabled.wordoress.com -a snapshot of @disabled people's lives & experiences, hosted for a week at a time by various disabled people.
I'm also going to be re-postimg some of my old cancer posts from tinustuff.com.
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Oct 1, 2018
I know I have real depression. I know this.

Damn if coffee doesn’t help me more than hurt. #myspoons
I wonder if getting out of the habit of drinking coffee was a daft choice as a #spoonie with multiple fatigue conditions.
Once my body let me get out of bed today, I figured, let me get coffee while I'm up. And wow.

It didn't fix everything (I’m definitely depressed and need a therapist) but damned if I'm not actually getting things done for the first time in 3 weeks.
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I like #Ifeelbad.

I hate the title. It's also accurate given the explanation.

I love the Indian 1st gen lead. I lover her being an older woman in text. I like the nerds.
Did her neighbor just ask her to agitate her compost? I'll fight you. #ifeelbad
I love how her husband wanted her to pick the restaurant, schedule the sitter etc. For the date where HE was going to spoil HER.

As a reward for putting her needs aside for his.

It’s really 1971. We’re just in hell. #ifeelbad #EmotionalLabor
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