501c3 funding first gene therapy clinical trial for Hunter Syndrome with your help. Save kids from a rare, terminal disease that steals them by their teens.
May 15, 2018 • 6 tweets • 3 min read
How to stand out?
Have you ever shared a pink, red, or blue ribbon or donated during an awareness campaign? Did most of your friends already know about that disease? /1
For #rarediseases, awareness days are TRULY vital to educate people about diseases most of the general public have never heard of.
And if they’ve never heard of it, it’s hard to have sympathy/empathy, and this hard for groups to generate funding for research.
