Writer, maker, chronic illness incubator. Former @VisibilityToday host. Disabled journo. Words in @guardian, @MetroUK, @NowThenMag, @TheUnwrittenPub etc
May 18, 2018 • 14 tweets • 3 min read
I kind of really hate when people romanticise pain like this, as though it’s a transient learning tool that’s there to help us grow.
Newsflash: you can learn without pain. Emotional growth doesn’t depend on being damaged, and if you think it does then you’ve probably had some really terrible relationships and I’m sorry for that.
Mar 25, 2018 • 11 tweets • 3 min read
Called 111 because the vertigo and headache is really not lessening since that MRI, and got an appointment for an out of hours GP at 8pm. Also just discovered that patients with MCAS have been found to react badly to gadolinium (the contrast used in MRIs). I have MCAS.
Surely someone should maybe have warned me about this before? Like "Hey, this pre-existing condition means you struggle to excrete this very damaging toxic metal in the same way most other patients can".