Tips for me, about ME and about tweeting. Was researcher on @chronicinclude. #MEAction volunteer. π¬π§ π₯ π³οΈβπ #POTS #EnergyImpairment #ELCI #MillionsMissing
May 27, 2018 β’ 7 tweets β’ 6 min read
This video has had nearly 30K views ππ»
In it @JessicaOOTC describes her experience of being locked in a psych ward after being diagnosed with #MyalgicE by the Bristol centre
@MEActNetUK#MEAwarenessMonth#pwme#PACETrial#stopGET#MillionsMissing
Despite(/because) her ME diagnosis they interpreted her low weight as anorexia. The gut/digestive issues as a result of ME go ignored. She isnβt the only #pwme to have experienced this. It is particularly tricky as an advocacy issue if people are sectioned for βanorexiaβ not ME