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melissa j hogan Profile picture
melissa j hogan
@melissajhogan
Attorney • Advocate • Author, “Afraid of the Doctor” • I write • I love • “We get into all kinds of trouble when we try to be admired.” - @mroachsmith
Jul 26, 2018 • 25 tweets • 23 min read
THREAD FOLLOWS: If you didn’t get to read my article, I’m going to share the medically inappropriate #BCBSTN #Idursulfase #medicalpolicy and the denials we’ve received as part of that.
melissahogan.me/bcbs-tn-wants-… Quick Primer on ultra #raredisease #HunterSyndrome: multi-system disease physically affecting bones, joints, liver, spleen, heart, airway, nervous system, auditory system causing progressive damage, function loss, pain, enlarged organs, carpal tunnel, hearing loss