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According to one neurosurgeon, my 2012 MRI (the self-same that my neurologist used to diagnose me with conversion disorder/hysteria) shows very clear signs of intracranial hypertension, most notably a pituitary gland that has been flattened into a pancake.
So when in #unrestfilm I say, "I can feel my brain pushing out my eyeballs" that is apparently true.
Of course I have been saying this for years, most notably when at the @GlendaleHosp ER last month, where I was diagnosed with "anxiety" and torticollis (tilting of the neck), even though the issue was that my neck COULD NOT TILT.
Read 18 tweets
The selling of quick solutions is of a piece with disbelief in the medical (and general) community. Indeed, the fact that we use language such as "believe," the language of faith, speaks to more than the invisibility of the disease on our bodies & on conventional empirical tests.
There is a deeper aversion at work, which is facilitated by the word "fatigue," which people perceive as a transient state. "Fatigue" is something to be overcome, and our individualistic society cannot brook the idea that someone cannot master it w/o some flaw in our character.
But at some level I think people really *do get it: who hasn't had the nightmare of being unable to move in the face of a threat? These are *primal anxieties. I believe these deep-seated fears lie behind both medical/popular skepticism & the initiative to sell quick fixes.
Read 7 tweets

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