Tinu Abayomi-Paul aka Empress of Twerk. NO DMs Profile picture
Writer. Speaker. Founder. “They Not Like Us” Black. She/her See link for help, NOT DM/tags #DisabledBlackTalk #MySpoons #OwCH #ForTinu 7025088468

May 22, 2018, 19 tweets

On #myspoons today I want to talk about other people's expectations & ableism about your symptoms.

The ones that plague me the most are #fatigue & #chronicpain. I went from writing 1800 words an hour, up to 4x daily?

To falling asleep while writing a single tweet. & Still needing at least 5 minutes of rest after sometimes.

That's not every days or all day but it happened often enough that I let go of fixing typos if the context will supply the meaning.....

And put both brain fog and typos and my health issues in my profile.

I also took up voice to text. It can't drag and drop a GIF for you on your phone, or figure out where your ALT text goes. Nor can it go back and fix typos.

Voice to text is a handy workaround when you are too fatigued to type. You can use @buffer to stagger your tweets when you don't want to bombard the timeline.

It works so well, in fact, that you may find other people's expectations a bigger problem.

People see me tweeting and assume I am full of energy, free to chat, and correct typos.

They don't see me taking three days to make a tweet.

#AbledAllies - you need to understand that you have no clue what we're going through.

I may have tweeted a thread two minutes ago and, added on to it 37 seconds later.

But I may be too exhausted to function seconds later.

And before you tweet me about a typo or start a conversation?

Maybe say something that shows you care for me beyond my emotional labor or your need for my words to be perfect.

I'm not saying typos aren't important. I may not be getting freelance editing work because of my typos here.

And I generally try to spell and type well.

#AbledAllies? Read up on #brainfog and #fibrofog. As I compose a tweet the fog can make me forget what I'm typing as I type.

So I type fast before I forget. But that's not the half.

As I'm typing, if I'm in fog, I may be seeing the words I meant to type & not what's there. Yes I'n also mildly dsylexic.

& Hoping that is spelled correctly.

#AbledAllies, sometimes I'm exhausted. If a typo wasn't important to meI'll let them go.

Not to mention? Fixing that typo might mean delaying a trip to the bathroom for an hour.

Yes, sometimes it's that deep.

Anyway that's what's up with my spoons RightNow:.

I have energy for conversation but I'm working on sleep. So I gotta hang up for now.

@threadreaderapp unroll me s'io vous plait

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