Discover and read the best of Twitter Threads about #fatigue
Most recents (9)
Bonjour @RokhayaDiallo, je ne voulais pas vous répondre, mais vos partisans ET vos détracteurs me pressent de le faire. Les 1ers ne m’en croient pas capables. Les 2nds trouvent que c’est important. Les deux ont tort, mais bon… je vous réponds quand même. #fatigue 👇🏼
Dans votre droit de réponse (que vous présentez quasiment comme une décision de justice, alors que rien n’est plus naturel quand on est mis en cause), vous vous défendez d’avoir tenu des propos que je ne vous attribue pas (« nègre de maison »). 
De fait, vous ne traitez jamais, à ma connaissance, de « nègre de maison » (ou « bounty », ou « collabeur ») les « racisés » qui sont en désaccord avec vous. Vous laissez ça à vos militants. Mais
#CroydonCrash #CoverUp @MayorofLondon @ValShawcross @Heidi_LDN: Kindly note 23May18 @TfL Board Minutes don't properly reflect what @MLiebreich actually said ICYMI "3 Times on 3 Separate Occasions IA 17780 had been sent to @raibgovuk @railandroad @BTP"
Regrettably, narrative City Hall & TfL PUSHING since I exposed #CoverUp January 2018 saferoxfordstreet.blogspot.com/2018/01/london… isn't supported by any FACTS. saferoxfordstreet.blogspot.com/2018/08/re-tfl… @CarolinePidgeon @KeithPrinceAM #CroydonCrash 7 People DIED, 62 Injured. #ShineALight NOW HT>@christianwolmar @V0LDN
In May18, I formally asked @LondonAssembly #AssemblyTransport to call City Hall & TfL Officials in for Formal Questioning saferoxfordstreet.blogspot.com/2018/05/the-cr… Why wasn't IA 17780 sent to #CroydonCrash Investigators, Regulators & Police when it'd been sitting in Top Managers' hands for months?
Having the #spooniechat community on Twitter helps me find resources and tips for my chronic illness in a way I don't get from doctors.
Doctors and non-spoonie friends suggest things, meaning well, that aren't practical, attainable or helpful.
But other people who have my symptoms or disease have field-tested answers.
#spooniechat
But other people who have my symptoms or disease have field-tested answers.
#spooniechat
It may be hard to understand if you've never been house-bound or bed-bound from #chronicpain or #fatigue.
You don't have the error ofmsrgin for experimentation.
You don't have the error ofmsrgin for experimentation.
@SadiqKhan @TfL #LondonBusWatch Reports from some Bus Depots: "A/C units being fixed" so THANK YOU for taking immediate action @MayorofLondon BUT as TfL Chair @Twitter reports from Bus Drivers & Volunteer Campaigners shouldn't be necessary #LeaveTheBunker @CarolineRussell
@SadiqKhan @TfL @MayorofLondon @Twitter @CarolineRussell As TfL Chair, you shouldn't have to be embarrassed by Bus Drivers calling you on @LBC @mrjamesob #SpeakToSadiq to complain about #BusSafety issue which should not exist b/c TfL's Claire Mann told @oliviat_93 "A/C required on all new buses since 2012" standard.co.uk/news/transport…
@SadiqKhan @TfL @MayorofLondon @Twitter @CarolineRussell @LBC @mrjamesob @oliviat_93 Think about it: if it wasn't for @Unite_Battersea tweeting pictures of the temperature in his bus cab on Social Media AND Bus Driver calling into #SpeakToSadiq AND Olivia's scoop in the Standard, would you—as TfL Chair—have even known about the A/C issue?
On #myspoons today I want to talk about other people's expectations & ableism about your symptoms.
The ones that plague me the most are #fatigue & #chronicpain. I went from writing 1800 words an hour, up to 4x daily?
To falling asleep while writing a single tweet. & Still needing at least 5 minutes of rest after sometimes.
This is a great suggestion.
Part of the reason I save my threads is to put them in a format I can turn into blog posts or essays etc.
My problem of course is being a #spoonie with #fatigue issues.
My problem of course is being a #spoonie with #fatigue issues.
If you have an #chronicillness with chronic fatigue and/or #chronicpain that saps your energy & you're an author...
allez, c’est parti pour la suite du #Zuckhearing devant le congrès. pour le style, on verse toujours dans la fanfic live report différé, en français.
nouveau thread pour l’occasion, histoire que vous n’ayez pas 400 tweets à dérouler. (je pense notamment à ceux qui ont des apps de merde android.) vous pouvez retrouver la première partie de l’histoire, devant le sénat, ici :
j’ai 4.1k mots et 24.5k signes à publier : comptez donc une grosse centaine de tweets (ça paraît beaucoup, mais en vrai c’est un peu moins que ce que poste @Pipomantis en une journée ー je dis pas ça à l’arrache je l’avais mesuré avec l’api twitter back in 2013.)
So right now #myspoons are waiting. I spend half my time waiting now that I'm chronically ill.
Let's talk energy conservation.
Let's talk energy conservation.
So first, the best I have ever heard what it's like explained was
🎥 The Spoon Theory by Christine Miserandino - this is where the #Spoonies Community stems from online.
🎥 The Spoon Theory by Christine Miserandino - this is where the #Spoonies Community stems from online.
In short, when I was well I never had to wonder how much energy I had to allocate. It wasn't finite.
Today #myspoons were supportive. I received support from others via Twitter.
We committed & shared stories. I only wish I had the energy to respond when the original poster began to vent.
We committed & shared stories. I only wish I had the energy to respond when the original poster began to vent.
If you ever become a #spoonie with #chronicpain, #fatigue or other conditions that cause you to become #housebound, you may find yourself searching for community, support, tips or other types of help.
The web can provide that.
The web can provide that.
