Type foggy. So I'll tell you about #myspoons then it's off to bed with me.

#brainfog
Today #myspoons were supportive. I received support from others via Twitter.

We committed & shared stories. I only wish I had the energy to respond when the original poster began to vent.
If you ever become a #spoonie with #chronicpain, #fatigue or other conditions that cause you to become #housebound, you may find yourself searching for community, support, tips or other types of help.

The web can provide that.
There are so many places you can looks. Sites, blog networks, Facebook. I've found no better place than Twitter for the stretches of days when I am housebound.
Being confined to your home sounds great at first. But have you ever been snowed in?

There's a difference between being home by choice & not having the ability to leave.
I recently read a blog post that made a very interesting point.

The conditions of housebound #Spoonies is the similar to methods used to break the psyche in torture.
Namely, being awakened each day and not knowing what unpleasant surprises await you, without foreknowledge that what worked to ease your pain will work again.
It's incredibly frustrating and can mess with your head and your concept of reality.

& The more inconsistent your ailment(s) behave, the less people in your life understand.
This makes your online support group essential. Walking around (or laying mostly still) with a round-the-ick micro version of therapy, advice & fellowship is priceless.
And today, as they have many times before, the Twitter #spoonie community #onhere has pulled me out of the repeating funk that comes from always being in pain & fatigued by it as well.
I'll drift off to (medicated) sleep, hopeful and grateful.

If you think you might be a Spoonie, get that squad aspect locked down asap. There's nothing like the company of someone who can truly relate, online or not.
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More from @Tinu

Oct 6, 2018
In any era the theme isn't theain problem. Let's start with the word "breastaurant."
In a world where people need a job enough to have to use their bodies for leverage, #MeToo isn't the thing in the way.
It's basic respect for women as PEOPLE. Does this restaurant perpetuate rape culture? Probably. So do lots of places.

Can you have CLEARLY POSTED rules and security precautions to protect these women? Um yeah.
Read 10 tweets
Oct 6, 2018
Updating Twitter disability hashtag thread.

@AllisonR has educated me that I should use Sentence Case for #Accessibility. Graphic reads: # symbol followed by the word Hashtag in white lettering on a blue background.
I have #brainfog so I know I missed someone. Please add your favorite resources as a reply.
Do you want to share your disability experience with others? Try these hashtags.

Amplifying stories

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 16 tweets
Oct 2, 2018
Mayne I forgot the code mayne.

Too paranoid to unlock my phone with my face.
My mother's chain mail game is strong. I can't buy phones they open with my face cuz I might be beheaded.

I guess that's what I get for never forwarding these emails.
Also I never open the door for anyone because maybe they stole that uniform although how did they know when to come to my house Mom?
Read 7 tweets
Oct 2, 2018
Friends, Romans, Country ass folks? This week all #myspoons threads will be cross-postedto @WeAreDisabled.
It's a cool project you can learn more about at weatedisabled.wordoress.com -a snapshot of @disabled people's lives & experiences, hosted for a week at a time by various disabled people.
I'm also going to be re-postimg some of my old cancer posts from tinustuff.com.
Read 5 tweets
Oct 1, 2018
I know I have real depression. I know this.

Damn if coffee doesn’t help me more than hurt. #myspoons
I wonder if getting out of the habit of drinking coffee was a daft choice as a #spoonie with multiple fatigue conditions.
Once my body let me get out of bed today, I figured, let me get coffee while I'm up. And wow.

It didn't fix everything (I’m definitely depressed and need a therapist) but damned if I'm not actually getting things done for the first time in 3 weeks.
Read 6 tweets
Sep 30, 2018
I like #Ifeelbad.

I hate the title. It's also accurate given the explanation.

I love the Indian 1st gen lead. I lover her being an older woman in text. I like the nerds.
Did her neighbor just ask her to agitate her compost? I'll fight you. #ifeelbad
I love how her husband wanted her to pick the restaurant, schedule the sitter etc. For the date where HE was going to spoil HER.

As a reward for putting her needs aside for his.

It’s really 1971. We’re just in hell. #ifeelbad #EmotionalLabor
Read 9 tweets

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