So right now #myspoons are waiting. I spend half my time waiting now that I'm chronically ill.

Let's talk energy conservation.
So first, the best I have ever heard what it's like explained was

🎥 The Spoon Theory by Christine Miserandino - this is where the #Spoonies Community stems from online.
In short, when I was well I never had to wonder how much energy I had to allocate. It wasn't finite.
Right now? I’m trying to recover enough from showering to eat breakfast. I’ve been up all night.

We’ll circle back to coping. (If you know all this just scroll down to the next Beyoncé GIF.)
But first let’s chat about what #Spoonielife is like. Imagine your phone is at 4% and you have three things you'd like to do. #shareourpain
Imagine that each of those things takes 2% of your battery. That is the daily puzzle of a #spoonie.
Now imagine that it takes a whole day to get your phone to a thirty percent charge. Some days it’ll charge to 50% or 12% for no apparent reason.
But you’re stuck with this phone for life.
And on the outside it looks like a regular smartphone.

So people still expect you to be able to be on full brightness and play iTunes while you browse the web & tweet.
Welcome to being a spoonies, the #fatigue edition. Given this situation, how do we get things done?
First you have to accept your situation. You can do two out of three things safely - some days that's just what it is.
True, you may have a reserve battery for emergencies or borrow a limited amount of tomorrow’s energy.
Just remember the result is often catastrophic. Do you really want to trade two days of bed confinement for this activity? Is it worth it?
Sometimes it will be. Day out with the kids. Save the kittens from a fire. Getting from the gate to baggage claim (even in a wheelchair.)
Second, just as we plan around having 24 hours in a day, so must we plan around our spoons.
Last week of every month I track my energy levels, food, sleep, and water intake, my mood and my activity.

Every few months I recheck during the peak of my cycle.
This helps me know when to schedule things. I can see when I tend to be the most alert & in good spirits. Sometimes being in a good mood matters.
In a nutshell, once you've tracked, you can plan.
Third, shortcuts.

If software can do a good job, use it. If you have people to delegate to or help, drop your pride & get help.

Discard or file todos that aren't priority.

Organize repeated tasks. Get into a routine & muscle memory will do half the job.
Fourth, schedule rest. That sounds loopy now but trust me. Having a calendar notification pop up and tell you rest will help you remember. And you might get more done.
Last, protect your energy. With all your heart and might. If you're tempted to push through? Unless you're on a deadline tied to livelihood money? Don't.
Don't ever push through. It's wack ableism internalized that makes you think you have to be a super-efficient profit center all the time.
I still struggle with this. Even through every time I have pushed through ended in disaster or likely triggered a dip in my health that coincided with a new ailment.
Don't push through. Rest, sleep if you can. You will get souch more done at your version of full power than you ever could running on fumes.
Welp. That's all my spoons for the day. Hope you could use them. Please feel free to reply with tips from your experience.
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More from @Tinu

Oct 6, 2018
In any era the theme isn't theain problem. Let's start with the word "breastaurant."
In a world where people need a job enough to have to use their bodies for leverage, #MeToo isn't the thing in the way.
It's basic respect for women as PEOPLE. Does this restaurant perpetuate rape culture? Probably. So do lots of places.

Can you have CLEARLY POSTED rules and security precautions to protect these women? Um yeah.
Read 10 tweets
Oct 6, 2018
Updating Twitter disability hashtag thread.

@AllisonR has educated me that I should use Sentence Case for #Accessibility. Graphic reads: # symbol followed by the word Hashtag in white lettering on a blue background.
I have #brainfog so I know I missed someone. Please add your favorite resources as a reply.
Do you want to share your disability experience with others? Try these hashtags.

Amplifying stories

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 16 tweets
Oct 2, 2018
Mayne I forgot the code mayne.

Too paranoid to unlock my phone with my face.
My mother's chain mail game is strong. I can't buy phones they open with my face cuz I might be beheaded.

I guess that's what I get for never forwarding these emails.
Also I never open the door for anyone because maybe they stole that uniform although how did they know when to come to my house Mom?
Read 7 tweets
Oct 2, 2018
Friends, Romans, Country ass folks? This week all #myspoons threads will be cross-postedto @WeAreDisabled.
It's a cool project you can learn more about at weatedisabled.wordoress.com -a snapshot of @disabled people's lives & experiences, hosted for a week at a time by various disabled people.
I'm also going to be re-postimg some of my old cancer posts from tinustuff.com.
Read 5 tweets
Oct 1, 2018
I know I have real depression. I know this.

Damn if coffee doesn’t help me more than hurt. #myspoons
I wonder if getting out of the habit of drinking coffee was a daft choice as a #spoonie with multiple fatigue conditions.
Once my body let me get out of bed today, I figured, let me get coffee while I'm up. And wow.

It didn't fix everything (I’m definitely depressed and need a therapist) but damned if I'm not actually getting things done for the first time in 3 weeks.
Read 6 tweets
Sep 30, 2018
I like #Ifeelbad.

I hate the title. It's also accurate given the explanation.

I love the Indian 1st gen lead. I lover her being an older woman in text. I like the nerds.
Did her neighbor just ask her to agitate her compost? I'll fight you. #ifeelbad
I love how her husband wanted her to pick the restaurant, schedule the sitter etc. For the date where HE was going to spoil HER.

As a reward for putting her needs aside for his.

It’s really 1971. We’re just in hell. #ifeelbad #EmotionalLabor
Read 9 tweets

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