Discover and read the best of Twitter Threads about #Spoonielife

Most recents (4)

Updating Twitter disability hashtag thread.

@AllisonR has educated me that I should use Sentence Case for #Accessibility. Graphic reads: # symbol followed by the word Hashtag in white lettering on a blue background.
I have #brainfog so I know I missed someone. Please add your favorite resources as a reply.
Do you want to share your disability experience with others? Try these hashtags.

Amplifying stories

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 16 tweets
I can... Do things. #spoonielife #myspoons

(That's a GIF of ladies dancing in a studio with the caption Namaste.)
So I went to this place for an same-day urgent consult.

They gave me the pain meds I was out of - Celebrex & Gabapentin. Then they gave me a shot for my new pain and a steroid.

I feel... Brand new. 🐣

(That's an emoji of a chick still an egg.)
I take that back.

I feel like me.
Read 29 tweets
So right now #myspoons are waiting. I spend half my time waiting now that I'm chronically ill.

Let's talk energy conservation.
So first, the best I have ever heard what it's like explained was

πŸŽ₯ The Spoon Theory by Christine Miserandino - this is where the #Spoonies Community stems from online.
In short, when I was well I never had to wonder how much energy I had to allocate. It wasn't finite.
Read 26 tweets
Tonight #myspoons are perplexed, as they often are. Behind, feeling broken & facing the ever-present question: should I try or rest?
It's the central debate of the #spoonielife. We need sleep but #painsomnia. Need rest but life needs doing.
Do we try to sleep, quite possibly spending our scarce time budget in futility? Or are tasks pressing enough to do at least than our best?
Read 8 tweets

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