Discover and read the best of Twitter Threads about #fibro
Most recents (6)
Updating Twitter disability hashtag thread.
@AllisonR has educated me that I should use Sentence Case for #Accessibility.
@AllisonR has educated me that I should use Sentence Case for #Accessibility.
I have #brainfog so I know I missed someone. Please add your favorite resources as a reply.
Do you want to share your disability experience with others? Try these hashtags.
Amplifying stories
#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Amplifying stories
#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
All I did was go to the doctor. Only 700 more steps than a normal day. But when I say I'm exhausted? #fibromialgia
I mean my body got to the point where I couldn't make it from my front door to my bedroom. #Fibromyalgia
I was too spent to eat. To walk. To think. To understand and Rey to words. My nephew kept trying to tell me something & after he repeated it twice, I finally had to tell him I couldn't hear him but couldn't listen.
For five minutes I could only sit there, breathing.
For five minutes I could only sit there, breathing.
I’m starting a new hashtag, #Nightingales, specifically to connect people with #EDS #hEDS #MECFS #POTS #MCAS #FIBRO. However, all are welcome!
Why these diagnoses? The thesis is that they share either an underlying biological relationship (genetic, environmental, pathophysiological or otherwise) OR a nosological one: they are actually different but often confused for each other. #Nightingales
It’s my hope that by communicating across community, we can all become better informed advocates and allies; help each other find more accurate diagnosis and effective treatment; and discuss science + clinical approaches from an interdisciplinary perspective. #Nightingales
.@SarahbaxterSTM's argues that #fibromyalgia, #mecfs, #lupus, #depression, self-harming and #anorexia are caused by female ambition and fragility.
What's c. 1880 is new again.
thetimes.co.uk/article/kirsty…
What's c. 1880 is new again.
thetimes.co.uk/article/kirsty…
This is just so silly. In the 19th century, there was a panic in the medical profession (and among social commentators) about women becoming ill with neurological and "nervous" conditions because they were overworking their brains/nerves, which were naturally weaker than men's.
This “fact” was used to bolster the argument in favor of stopping women's formal education after age 16 and most certainly not letting them enroll in university.
I keep downloading apps and forgetting to use them. Or what I'm doing. Or what meds are called.
#SpoonieSpeak
#SpoonieSpeak
Yesterday while watching #GreysAnatomy I asked my niece what the doctor place is called.
The hospital. At least that's what I gathered from her giggle fit.
#SpoonieSpeak
The hospital. At least that's what I gathered from her giggle fit.
#SpoonieSpeak
The amount of added pain I get when I go downstairs & heat up dinner so I can take meds...
Meds I can't take on an empty stomach. That cause weight gain. #Fibro
Meds I can't take on an empty stomach. That cause weight gain. #Fibro
But if I wait, the timing of other meds will be off. So will my sleep. Weeks of cascading errors. #chronicpain
The agony is exhausting to the point that I'm not only no longer hungry, I'm nauseated.
By the time I recover my food will be cold as usual.
#SpoonieProblems
By the time I recover my food will be cold as usual.
#SpoonieProblems
