Discover and read the best of Twitter Threads about #Fibromyalgia
Most recents (5)
Updating Twitter disability hashtag thread.
@AllisonR has educated me that I should use Sentence Case for #Accessibility.
@AllisonR has educated me that I should use Sentence Case for #Accessibility.
I have #brainfog so I know I missed someone. Please add your favorite resources as a reply.
Do you want to share your disability experience with others? Try these hashtags.
Amplifying stories
#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Amplifying stories
#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
All I did was go to the doctor. Only 700 more steps than a normal day. But when I say I'm exhausted? #fibromialgia
I mean my body got to the point where I couldn't make it from my front door to my bedroom. #Fibromyalgia
I was too spent to eat. To walk. To think. To understand and Rey to words. My nephew kept trying to tell me something & after he repeated it twice, I finally had to tell him I couldn't hear him but couldn't listen.
For five minutes I could only sit there, breathing.
For five minutes I could only sit there, breathing.
.@SarahbaxterSTM's argues that #fibromyalgia, #mecfs, #lupus, #depression, self-harming and #anorexia are caused by female ambition and fragility.
What's c. 1880 is new again.
thetimes.co.uk/article/kirsty…
What's c. 1880 is new again.
thetimes.co.uk/article/kirsty…
This is just so silly. In the 19th century, there was a panic in the medical profession (and among social commentators) about women becoming ill with neurological and "nervous" conditions because they were overworking their brains/nerves, which were naturally weaker than men's.
This “fact” was used to bolster the argument in favor of stopping women's formal education after age 16 and most certainly not letting them enroll in university.
I have just discovered that #Oregon is proposing changes to the state #opioid policy for #chronicpain patients on #medicaid.
I am incensed and I don't even live in Oregon. So let's break this down. #disability #opioidhysteria #spoonies #painpatients #opioidepidemic
Buckle up.
I am incensed and I don't even live in Oregon. So let's break this down. #disability #opioidhysteria #spoonies #painpatients #opioidepidemic
Buckle up.
CW: ableism, bullshit, suicide, swearing
References:
portlandtribune.com/pt/9-news/4013…
nationalpainreport.com/chronic-pain-a…
References:
portlandtribune.com/pt/9-news/4013…
nationalpainreport.com/chronic-pain-a…
To summarize:
-Oregon's Health Evidence Review Commission and Value-based Benefits Subcommittee (HERC and VbBS) are proposing changes to Medicaid
-The changes intend to discontinue long term opioids for chronic pain patients
-Oregon's Health Evidence Review Commission and Value-based Benefits Subcommittee (HERC and VbBS) are proposing changes to Medicaid
-The changes intend to discontinue long term opioids for chronic pain patients
Given that it's #Fibromyalgia Awareness Day in the middle of #EhlersDanlos Awareness Month, let's talk about misdiagnosis.
People with hypermobile EDS or Hypermobility Spectrum Disorder often spend years misdiagnosed with fibromyalgia…
#fibroawarenessday #EDSAwarenessMonth
People with hypermobile EDS or Hypermobility Spectrum Disorder often spend years misdiagnosed with fibromyalgia…
#fibroawarenessday #EDSAwarenessMonth
…I meet people with really clear signs of hypermobility who've been diagnosed with #Fibromyalgia by rheumatology, treated at pain management clinics, or even seen physiotherapy.
None of those professionals seem to know to screen for hypermobility syndromes…
#fibroawarenessday
None of those professionals seem to know to screen for hypermobility syndromes…
#fibroawarenessday
…This is important because hypermobility syndromes have a physical basis for joint pain that can be improved by multidisciplinary management.
Occupational therapy can provide equipment and teach behavioural changes that reduce stress on joints, Orthotics can support ankles…
Occupational therapy can provide equipment and teach behavioural changes that reduce stress on joints, Orthotics can support ankles…
