Musical confabulations of @AlyThymia & @trashsynth. An eclectic mix of folk & synthpop, inspired by our life struggles & the fantasy fiction that got us through
May 12, 2018 • 8 tweets • 4 min read
Given that it's #Fibromyalgia Awareness Day in the middle of #EhlersDanlos Awareness Month, let's talk about misdiagnosis.
People with hypermobile EDS or Hypermobility Spectrum Disorder often spend years misdiagnosed with fibromyalgia…
#fibroawarenessday#EDSAwarenessMonth
…I meet people with really clear signs of hypermobility who've been diagnosed with #Fibromyalgia by rheumatology, treated at pain management clinics, or even seen physiotherapy.
None of those professionals seem to know to screen for hypermobility syndromes…
