On #myspoons today I want to talk about other people's expectations & ableism about your symptoms.
The ones that plague me the most are #fatigue & #chronicpain. I went from writing 1800 words an hour, up to 4x daily?
To falling asleep while writing a single tweet. & Still needing at least 5 minutes of rest after sometimes.
That's not every days or all day but it happened often enough that I let go of fixing typos if the context will supply the meaning.....
And put both brain fog and typos and my health issues in my profile.
I also took up voice to text. It can't drag and drop a GIF for you on your phone, or figure out where your ALT text goes. Nor can it go back and fix typos.
Voice to text is a handy workaround when you are too fatigued to type. You can use @buffer to stagger your tweets when you don't want to bombard the timeline.
It works so well, in fact, that you may find other people's expectations a bigger problem.
People see me tweeting and assume I am full of energy, free to chat, and correct typos.
They don't see me taking three days to make a tweet.
They don't see me taking three days to make a tweet.
#AbledAllies - you need to understand that you have no clue what we're going through.
I may have tweeted a thread two minutes ago and, added on to it 37 seconds later.
But I may be too exhausted to function seconds later.
But I may be too exhausted to function seconds later.
And before you tweet me about a typo or start a conversation?
Maybe say something that shows you care for me beyond my emotional labor or your need for my words to be perfect.
Maybe say something that shows you care for me beyond my emotional labor or your need for my words to be perfect.
I'm not saying typos aren't important. I may not be getting freelance editing work because of my typos here.
And I generally try to spell and type well.
And I generally try to spell and type well.
#AbledAllies? Read up on #brainfog and #fibrofog. As I compose a tweet the fog can make me forget what I'm typing as I type.
So I type fast before I forget. But that's not the half.
So I type fast before I forget. But that's not the half.
As I'm typing, if I'm in fog, I may be seeing the words I meant to type & not what's there. Yes I'n also mildly dsylexic.
& Hoping that is spelled correctly.
& Hoping that is spelled correctly.
#AbledAllies, sometimes I'm exhausted. If a typo wasn't important to meI'll let them go.
Not to mention? Fixing that typo might mean delaying a trip to the bathroom for an hour.
Yes, sometimes it's that deep.
Yes, sometimes it's that deep.
Anyway that's what's up with my spoons RightNow:.
I have energy for conversation but I'm working on sleep. So I gotta hang up for now.
I have energy for conversation but I'm working on sleep. So I gotta hang up for now.
@threadreaderapp unroll me s'io vous plait
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