On #myspoons today I want to talk about other people's expectations & ableism about your symptoms.
The ones that plague me the most are #fatigue & #chronicpain. I went from writing 1800 words an hour, up to 4x daily?
To falling asleep while writing a single tweet. & Still needing at least 5 minutes of rest after sometimes.
That's not every days or all day but it happened often enough that I let go of fixing typos if the context will supply the meaning.....
And put both brain fog and typos and my health issues in my profile.
I also took up voice to text. It can't drag and drop a GIF for you on your phone, or figure out where your ALT text goes. Nor can it go back and fix typos.
Voice to text is a handy workaround when you are too fatigued to type. You can use @buffer to stagger your tweets when you don't want to bombard the timeline.
It works so well, in fact, that you may find other people's expectations a bigger problem.
People see me tweeting and assume I am full of energy, free to chat, and correct typos.

They don't see me taking three days to make a tweet.
#AbledAllies - you need to understand that you have no clue what we're going through.
I may have tweeted a thread two minutes ago and, added on to it 37 seconds later.

But I may be too exhausted to function seconds later.
And before you tweet me about a typo or start a conversation?

Maybe say something that shows you care for me beyond my emotional labor or your need for my words to be perfect.
I'm not saying typos aren't important. I may not be getting freelance editing work because of my typos here.

And I generally try to spell and type well.
#AbledAllies? Read up on #brainfog and #fibrofog. As I compose a tweet the fog can make me forget what I'm typing as I type.

So I type fast before I forget. But that's not the half.
As I'm typing, if I'm in fog, I may be seeing the words I meant to type & not what's there. Yes I'n also mildly dsylexic.

& Hoping that is spelled correctly.
#AbledAllies, sometimes I'm exhausted. If a typo wasn't important to meI'll let them go.
Not to mention? Fixing that typo might mean delaying a trip to the bathroom for an hour.

Yes, sometimes it's that deep.
Anyway that's what's up with my spoons RightNow:.

I have energy for conversation but I'm working on sleep. So I gotta hang up for now.
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More from @Tinu

Oct 6, 2018
In any era the theme isn't theain problem. Let's start with the word "breastaurant."
In a world where people need a job enough to have to use their bodies for leverage, #MeToo isn't the thing in the way.
It's basic respect for women as PEOPLE. Does this restaurant perpetuate rape culture? Probably. So do lots of places.

Can you have CLEARLY POSTED rules and security precautions to protect these women? Um yeah.
Read 10 tweets
Oct 6, 2018
Updating Twitter disability hashtag thread.

@AllisonR has educated me that I should use Sentence Case for #Accessibility. Graphic reads: # symbol followed by the word Hashtag in white lettering on a blue background.
I have #brainfog so I know I missed someone. Please add your favorite resources as a reply.
Do you want to share your disability experience with others? Try these hashtags.

Amplifying stories

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 16 tweets
Oct 2, 2018
Mayne I forgot the code mayne.

Too paranoid to unlock my phone with my face.
My mother's chain mail game is strong. I can't buy phones they open with my face cuz I might be beheaded.

I guess that's what I get for never forwarding these emails.
Also I never open the door for anyone because maybe they stole that uniform although how did they know when to come to my house Mom?
Read 7 tweets
Oct 2, 2018
Friends, Romans, Country ass folks? This week all #myspoons threads will be cross-postedto @WeAreDisabled.
It's a cool project you can learn more about at weatedisabled.wordoress.com -a snapshot of @disabled people's lives & experiences, hosted for a week at a time by various disabled people.
I'm also going to be re-postimg some of my old cancer posts from tinustuff.com.
Read 5 tweets
Oct 1, 2018
I know I have real depression. I know this.

Damn if coffee doesn’t help me more than hurt. #myspoons
I wonder if getting out of the habit of drinking coffee was a daft choice as a #spoonie with multiple fatigue conditions.
Once my body let me get out of bed today, I figured, let me get coffee while I'm up. And wow.

It didn't fix everything (I’m definitely depressed and need a therapist) but damned if I'm not actually getting things done for the first time in 3 weeks.
Read 6 tweets
Sep 30, 2018
I like #Ifeelbad.

I hate the title. It's also accurate given the explanation.

I love the Indian 1st gen lead. I lover her being an older woman in text. I like the nerds.
Did her neighbor just ask her to agitate her compost? I'll fight you. #ifeelbad
I love how her husband wanted her to pick the restaurant, schedule the sitter etc. For the date where HE was going to spoil HER.

As a reward for putting her needs aside for his.

It’s really 1971. We’re just in hell. #ifeelbad #EmotionalLabor
Read 9 tweets

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