I'm trying to smile through this but I keep thinking...

I'm privileged. If dealing with healthcare is this bad for me? It must really suck for others.
Not to mention how the anxiety & stress is racheting up my #chronicpain issues. So here's a rare morning summary of #MySpoons "Healthcare is Fucked" edition.
So the great plan I had last year was ended by Blue Cross Blue Shield Texas probably because it was a great plan. I was moved to a "comparable one.

Narrator: It did not compare.
So I headed to Healthcare.gov to find one that made actual sense.

I signed up with a slightly more kick ass superb Silver plan that only exists because "President" Asterisk incompetent.
Ok I'm exaggerating. It was only *affordable* because he's incompetent. My stock is in decline, let me have this.
Due to a paperwork error, my income went down by $3k this month.

Had I known this was coming at the beginning of December, I might have adjusted. I blew the rest of my "savings" on medical debt instead.
I had paid my other bills before I found out. Living indoors with electricity and food is kinda my jam. & Since my nieces and nephews are here, that has to come first.
That left me $200 short for my healthcare bill, right when I found out I'm not getting paid. Luckily family was able to offer help before the bill is due.
But of course that's after my doctor's appointments this week. No big deal. I'm only finding out IF I STILL HAVE CANCER this week.
It's just the week of my sleep apnea mask fitting. And sleeping well was only expected to help around 60 - 75% of my issues after a week.
I know that I'm basically whining that my car is a Nova in a world where most struggle to even have cars. I know that.
But I was supposed to find out if I'm cancer free in August. It's so hard to plan your life when you don't know if you're about to start #chemo again & can't sleep so you can only work part time.
This has been going on for MONTHS & I'm about to lose it & last summer my health care costs were covered by Maryland & I can't take these delays anymore.
I'm losing my grip and I can't even schedule therapy because I don't have coverage until I pay the bill which is why I need therapy!
So when you're wondering if this ACA fight is worth it? Or if Democrats in Congress would make a difference?
Spare those of us struggling to navigate the healthcare system a thought. We matter. So do you. We can do this. And we must.
I remember how my life was different when I could just go to the doctor.

I paid for years into the tax system and I feel I deserve that back. We all do. Even those who can't.
Ok so I'm going to cry for a while and I'll be back when I can pull myself together. Ta.
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More from @Tinu

Oct 6, 2018
In any era the theme isn't theain problem. Let's start with the word "breastaurant."
In a world where people need a job enough to have to use their bodies for leverage, #MeToo isn't the thing in the way.
It's basic respect for women as PEOPLE. Does this restaurant perpetuate rape culture? Probably. So do lots of places.

Can you have CLEARLY POSTED rules and security precautions to protect these women? Um yeah.
Read 10 tweets
Oct 6, 2018
Updating Twitter disability hashtag thread.

@AllisonR has educated me that I should use Sentence Case for #Accessibility. Graphic reads: # symbol followed by the word Hashtag in white lettering on a blue background.
I have #brainfog so I know I missed someone. Please add your favorite resources as a reply.
Do you want to share your disability experience with others? Try these hashtags.

Amplifying stories

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 16 tweets
Oct 2, 2018
Mayne I forgot the code mayne.

Too paranoid to unlock my phone with my face.
My mother's chain mail game is strong. I can't buy phones they open with my face cuz I might be beheaded.

I guess that's what I get for never forwarding these emails.
Also I never open the door for anyone because maybe they stole that uniform although how did they know when to come to my house Mom?
Read 7 tweets
Oct 2, 2018
Friends, Romans, Country ass folks? This week all #myspoons threads will be cross-postedto @WeAreDisabled.
It's a cool project you can learn more about at weatedisabled.wordoress.com -a snapshot of @disabled people's lives & experiences, hosted for a week at a time by various disabled people.
I'm also going to be re-postimg some of my old cancer posts from tinustuff.com.
Read 5 tweets
Oct 1, 2018
I know I have real depression. I know this.

Damn if coffee doesn’t help me more than hurt. #myspoons
I wonder if getting out of the habit of drinking coffee was a daft choice as a #spoonie with multiple fatigue conditions.
Once my body let me get out of bed today, I figured, let me get coffee while I'm up. And wow.

It didn't fix everything (I’m definitely depressed and need a therapist) but damned if I'm not actually getting things done for the first time in 3 weeks.
Read 6 tweets
Sep 30, 2018
I like #Ifeelbad.

I hate the title. It's also accurate given the explanation.

I love the Indian 1st gen lead. I lover her being an older woman in text. I like the nerds.
Did her neighbor just ask her to agitate her compost? I'll fight you. #ifeelbad
I love how her husband wanted her to pick the restaurant, schedule the sitter etc. For the date where HE was going to spoil HER.

As a reward for putting her needs aside for his.

It’s really 1971. We’re just in hell. #ifeelbad #EmotionalLabor
Read 9 tweets

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