Still not recovered from going to the airport & the day before, the damn grocery store.

Shoulda stayed in bed. Here's why I'm happy I didn't.

#mypaindiary #SHAREOURPAIN
As I've probably mentioned. #myspoons seem to last longer when I'm in a good mood.

& I'm in one today because of the people I live with.
This morning I didn't have to lift a finger, because their Dad woke them up.
My mother called and offered to make me eggs. I woul find out later but it was her spicy eggs.

Actual footage of me eating what Mom cooks especially for me believe.
I told my mother how I planned to get my cash right. She told me hell no, follow the doctor's orders and rest.

Then she gave me her last non-emergency funds to keep my site bare bones running. Queen. Denied my refusals.
When I came back down my brother in law had cleaned the entire house and filed my Mom's pack rat items.

Then he moved & installed the big screen TVs.
3 of us couldn't lift the 56 inch LCD for more than a few seconds. He's picking them up like they're folding chairs.
Couldn't let him do all that work & not gather with the whole family. I could feel their togetherness from upstairs.
My nieces & nephews kept cuddling up to their father. He keeps picking them up and holding them. I'm so touched by their love for each other. ❤️❤️❤️❤️♥️♥️♥️
My sister AND my mother cooked. Omg homemade #Naija food. If there's anything better on earth I fear it. For that much joy must certainly smite ye.
We all sat in the living room and talked. Then kids were sent to bed, my bro-in-law was jet lagged, my mama went to sleep.

& My sister and I did our full Thursday night #TGIT chill. First time since May or June.
Renewed conversation with Mom in the evening. She told me to relax, that my health is more important than bills.
Sis pointed out that I never rested. She's right.

I worked full time from diagnosis to chemo.

I worked part time during chemo 10- 15 hours a week.

I've been working half time during recovery. This is madness.
So that's why I'm drained & will probably extend my recovery time into the weekend.
Only now? I'll feel okay about it.

Sure, this pain is draining and fatigue is making it worse.

But my family understands today.

Everyone has stepped it up a notch, at least for now. I feel safe and loved. And very very tired.
unroll s'il tu plait.

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More from @Tinu

Oct 6, 2018
In any era the theme isn't theain problem. Let's start with the word "breastaurant."
In a world where people need a job enough to have to use their bodies for leverage, #MeToo isn't the thing in the way.
It's basic respect for women as PEOPLE. Does this restaurant perpetuate rape culture? Probably. So do lots of places.

Can you have CLEARLY POSTED rules and security precautions to protect these women? Um yeah.
Read 10 tweets
Oct 6, 2018
Updating Twitter disability hashtag thread.

@AllisonR has educated me that I should use Sentence Case for #Accessibility. Graphic reads: # symbol followed by the word Hashtag in white lettering on a blue background.
I have #brainfog so I know I missed someone. Please add your favorite resources as a reply.
Do you want to share your disability experience with others? Try these hashtags.

Amplifying stories

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 16 tweets
Oct 2, 2018
Mayne I forgot the code mayne.

Too paranoid to unlock my phone with my face.
My mother's chain mail game is strong. I can't buy phones they open with my face cuz I might be beheaded.

I guess that's what I get for never forwarding these emails.
Also I never open the door for anyone because maybe they stole that uniform although how did they know when to come to my house Mom?
Read 7 tweets
Oct 2, 2018
Friends, Romans, Country ass folks? This week all #myspoons threads will be cross-postedto @WeAreDisabled.
It's a cool project you can learn more about at weatedisabled.wordoress.com -a snapshot of @disabled people's lives & experiences, hosted for a week at a time by various disabled people.
I'm also going to be re-postimg some of my old cancer posts from tinustuff.com.
Read 5 tweets
Oct 1, 2018
I know I have real depression. I know this.

Damn if coffee doesn’t help me more than hurt. #myspoons
I wonder if getting out of the habit of drinking coffee was a daft choice as a #spoonie with multiple fatigue conditions.
Once my body let me get out of bed today, I figured, let me get coffee while I'm up. And wow.

It didn't fix everything (I’m definitely depressed and need a therapist) but damned if I'm not actually getting things done for the first time in 3 weeks.
Read 6 tweets
Sep 30, 2018
I like #Ifeelbad.

I hate the title. It's also accurate given the explanation.

I love the Indian 1st gen lead. I lover her being an older woman in text. I like the nerds.
Did her neighbor just ask her to agitate her compost? I'll fight you. #ifeelbad
I love how her husband wanted her to pick the restaurant, schedule the sitter etc. For the date where HE was going to spoil HER.

As a reward for putting her needs aside for his.

It’s really 1971. We’re just in hell. #ifeelbad #EmotionalLabor
Read 9 tweets

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