Discover and read the best of Twitter Threads about #myalgicencephalomyelitis

Most recents (2)

Very disappointed by Medscape's USMLE practice question of the week. Asked to diagnose woman with unexplained pain and they don't even give a physical disorder as an option. Their 'correct' answer = Munchausen Syndrome. This is the bullshit we're teaching our docs?!
Munchausen Syndrome is considered rare, but the case of a woman with unexplained pain is anything but. There are numerous conditions that cause pain but are difficult to dx & don't show up on anything but the most specialized testing, if at all. A cbc does not show all, people!
Autoimmune diseases, mast cell activation disorders, Ehlers-Danlos Syndrome, #MyalgicEncephalomyelitis for example
Read 5 tweets
This video has had nearly 30K views 👍🏻
In it @JessicaOOTC describes her experience of being locked in a psych ward after being diagnosed with #MyalgicE by the Bristol centre

@MEActNetUK #MEAwarenessMonth #pwme #PACETrial #stopGET #MillionsMissing
Despite(/because) her ME diagnosis they interpreted her low weight as anorexia. The gut/digestive issues as a result of ME go ignored. She isn’t the only #pwme to have experienced this. It is particularly tricky as an advocacy issue if people are sectioned for ‘anorexia’ not ME
It is a high priority for Dr education and I wonder if for new #NICEguidelines we need gut issues included as core to ME, rather than the current wording of IBS as a comorbidity issue?
Locking people in psych wards for this has to stop!
@exceedhergrasp1 @jenbrea @keithgeraghty
Read 7 tweets

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