Thread by @Tinu

Type foggy. So I'll tell you about #myspoons then it's off to bed with me.

#brainfog

Today #myspoons were supportive. I received support from others via Twitter.

We committed & shared stories. I only wish I had the energy to respond when the original poster began to vent.

If you ever become a #spoonie with #chronicpain, #fatigue or other conditions that cause you to become #housebound, you may find yourself searching for community, support, tips or other types of help.

The web can provide that.

There are so many places you can looks. Sites, blog networks, Facebook. I've found no better place than Twitter for the stretches of days when I am housebound.

Being confined to your home sounds great at first. But have you ever been snowed in?

There's a difference between being home by choice & not having the ability to leave.

I recently read a blog post that made a very interesting point.

The conditions of housebound #Spoonies is the similar to methods used to break the psyche in torture.

Namely, being awakened each day and not knowing what unpleasant surprises await you, without foreknowledge that what worked to ease your pain will work again.

It's incredibly frustrating and can mess with your head and your concept of reality.

& The more inconsistent your ailment(s) behave, the less people in your life understand.

This makes your online support group essential. Walking around (or laying mostly still) with a round-the-ick micro version of therapy, advice & fellowship is priceless.

And today, as they have many times before, the Twitter #spoonie community #onhere has pulled me out of the repeating funk that comes from always being in pain & fatigued by it as well.

I'll drift off to (medicated) sleep, hopeful and grateful.

If you think you might be a Spoonie, get that squad aspect locked down asap. There's nothing like the company of someone who can truly relate, online or not.

unroll please